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The Beauty of Imperfection

  
  
  

After I shared this story in today's newsletter, many people asked me to post it on my blog so they could share it with others. So, here you go ...

MaryKI first met Mary, my husband's youngest sister, shortly after we started dating. She was the first person I'd ever known with Down's Syndrome. To me, she looked funny, she talked funny and she chewed with her mouth open. It made me uncomfortable.

Back then, kids like her weren't mainstreamed. They didn't exist. And I had no experience dealing with this human imperfection. So I kept my distance, not wanting to interact with this flawed individual. But Mary wouldn't let me do that. She refused to give up on me. And her charm worked as she wormed her way into my heart.

The truth is, my life was blessed because of Mary. She gave me a whole different perspective through which to view my life and taught me a lot. Let me share a few stories:

Mary's favorite holiday was Christmas. She delighted in opening her gifts. But she left nothing to chance. Every Thanksgiving, she pulled me aside to review her very specific list. When I gave her the Fresh Apple Anti-Bacterial Moisturizing Hand Soap that she requested, she chortled in glee.

But I'll never forget the year I bought her the wrong Steven King novel. (I'd searched six stores for the one she wanted, but they were sold out.) Her shock and disappointment in me were plainly evident. She let me know it. The following year, I shopped for her gifts as soon as I got the list.

The lesson? Ask for what you want, expect people to deliver and fully appreciate it when they do. But if they let you down, be clear on that too.

Mary loved looking through Victoria Secret catalogs. But unlike most women, she didn't get one bit depressed comparing herself to all those gorgeous sexy models -- even though she was short, pudgy and hunched over from arthritis.

Do you know what she saw? Herself, wearing all those revealing outfits, prancing around and posing in her beautiful body. Because to Mary, she was beautiful. Just as drop-dead gorgeous as those cover girls. She never once bought into the marketing messages that bombard us on a daily basis, telling us we need to be something we aren't.

The lesson? Never let anyone tell you you're not perfect, just as you are. Appreciate yourself.

Over the years, Mary developed major crushes on different celebrities like the Oakridge Boys and Michael Landon. -- but only one at time. Every day, she'd write them a fan letter. She'd buy all their albums, dance to their music, read all their books and watch all their movies.

One of her final loves was Prince, the hugely popular singer & songwriter from Minnesota, where we live. While she never did get to meet him personally, she was invited to take a personal tour of Paisley Park, his recording studio. It was one of the highlights of her life.

The lesson? Be persistent. Go after what you want and enjoy doing it. Life isn't always about achieving goals. It's about living.

Mary had tons of health problems. She had severe diabetes which had to be monitored constantly. She was hobbled by arthritis. Her kidneys were failing and she was on dialysis several times per week. She never complained, despite the pain and the restrictions on her life.

She let people serve her because she needed their help. She did it gracefully and appreciatively. She saw their "goodness" and that's what they gave her. She made them feel valuable.

The lesson? Complaining doesn't make anything better. People really do want to help you -- if you let them.

I think you're getting the picture. A little imp. A lot of love. So much we can learn from her simple, uncomplicated ways.

And to think that I thought she was flawed. Who was I to judge? A hard-charging, self-motivated achiever who was making my mark on the business world. Someone who was constantly comparing myself to others and falling short.

Mary taught me about the "beauty of imperfection" -- that you're wonderful simply because you exist with all your glorious warts and shortfalls. She helped me appreciate what I had, not what I was missing. And finally, to know that's all I truly needed.

A FINAL NOTE

Two years ago, on December 23rd I was wrapping Mary's Christmas present when we got the call that she'd fallen into a coma. My husband immediately raced up north, leaving the kids & I behind. She passed away the next day. As you might imagine, it was a tough holiday.

Several days later, I came across her unwrapped gift, Barbara Streisand's new CD. When I opened it up and read the lyrics to one of the songs, I felt like Mary had left us a her final message ...

HERE'S TO LIFE

No complaints and no regrets
I still believe in chasing dreams and placing bets
And I have learned that all you give, is all you get
So give it all you've got.

I had my share, I drank my fill
And even though I'm satisfied, I'm hungry still
To see what's down another road, beyond a hill
And do it all again.

So here's to life
And every joy it brings.
Here's to life
To dreamers and their dreams.

Funny how the time just flies
How love can go from warm hellos to sad goodbyes
And leave you with the memories you've memorized
To keep your winters warm.

But there's no yes in yesterday
And who knows what tomorrow brings, or takes away.
As long as I'm still in the game, I want to play
For laughs, for life, for love.

So here's to life
And every joy it brings.
Here's to life
To dreamers and their dreams.
May all your storms be weathered
And all that's good get better.

Here's to life
Here's to love
And here's to you!

 

Please share your story too. It will inspire us all to be better human beings.

Comments

Jill, I am in tears. What a powerful, moving, lesson learning story. Thank you for sharing this. 
 
Merry Christmas!
Posted @ Thursday, December 22, 2011 11:29 AM by Trish
Jill, 
 
Thank you for a very moving and heartfelt story. I'm glad Mary was able to give you such valuable lessons -- and I thank you for sharing them with us. 
 
Merry Christmas and a Joyous New Year to you and your family! 
 
@ArthurGermain 
Posted @ Thursday, December 22, 2011 11:54 AM by @ArthurGermain
Now THAT is training!!!! Thank you Jill.
Posted @ Thursday, December 22, 2011 12:41 PM by Jerry Ruland
God gives us these special people so we can understand what life is really about. He then asks them to come join him for eternity. You can see she was special in the smile in the picture. Thank You!
Posted @ Thursday, December 22, 2011 2:25 PM by Larry Johnson
Such a perfect message for this time of year. Thank you for sharing such a wonderful life story. Merry Christmas!
Posted @ Thursday, December 22, 2011 2:57 PM by Kathleen Baker
Jill, thank you for such a touching and wonderful story and a great life lesson. 
 
Happy Holidays to you and your family.
Posted @ Thursday, December 22, 2011 3:48 PM by Ron
I got here because Katie posted about it on FB and I was struck by the subject. Katie and I did the MA together in Malta... 
 
I've known people with down syndrome ever since I was a kid and was educated to treat them as normal.  
 
Your post here is very powerful in that it gives this an all new perspective - we can look at the simplicity with which these people view life and learn so much from them. 
 
Thank you sharing this beautiful story. And happy holidays.
Posted @ Thursday, December 22, 2011 4:27 PM by Derrick
Heartwarming, poignant story, Jill. Thank you for sharing.
Posted @ Thursday, December 22, 2011 4:53 PM by Marcia Jedd
Such a beautiful story and I would have loved to rock out with Mary and Prince! Great life lessons here -thanks for sharing with us.
Posted @ Thursday, December 22, 2011 5:31 PM by Margie Albert
One of the most moving, inspiring pieces of writing I've ever read, Jill. Great writing is when the author forever alters your perspective; you just did that for me--thank you.
Posted @ Friday, December 23, 2011 6:10 AM by Robert Terson
Awesome post, Jill, beautiful, touching and inspiring. Brought tears to my eyes' thank you for sharing.
Posted @ Friday, December 23, 2011 10:45 PM by Maria
Great Story Jill- you are always filled with soul and spirit.  
 
Happy Holidays! 
 
 
 
BTW- LOVE your new blog!
Posted @ Tuesday, December 27, 2011 2:41 PM by Josiane Feigon
What a moving story. Appreciate your honesty in walking into these lessons and your reflections on them. Hope your New Year is off to a great start!
Posted @ Tuesday, January 03, 2012 6:43 PM by Lynnette Zika
Beautiful episode that you have shared, Marie was a wonderful soul and I can feel the relationship that you have shared with her. 
 
Hope your new year is of to a great start.
Posted @ Wednesday, January 04, 2012 8:25 AM by Mrinal
God has put truly amazing people in this world to teach us all to be a little more humble and appreciate the gifts we've been given. Beautiful story Jill. Amen!
Posted @ Wednesday, January 04, 2012 10:17 AM by Wendy Otto
I was sent this story by a close friend who knew my sister Leslie - very much a parallel spirit to Mary. Leslie was "retarded" - a word I didn't understand until I was about 12 - at the time, Leslie was 17 but acted like a child of 8. Leslie became my life inspiration - she taught me about accptance, consideration and unconditional love. Like Mary, my sister was a severe diabetic, was on dialysis, had arthritis and a passion for dogs which they returned in kind to her. I was lucky enough to get to my sister's side just before she slipped into a coma - and I sat with her for 3 days until she passed. It was a privilege and honor to have had Leslie in my life. I, too, had my life graced by the Beauty of Imperfection - it was perfect. Thank you for this beautiful story.
Posted @ Saturday, January 07, 2012 6:50 AM by Paul K.
How sad it is that most people, as you first did, steer away from people with special needs because of the ill-at-ease factor. I thank God for Mary's persistence and people like her. Because truth be told, these are the exact people who live in the moment and get the most out of life's beautiful simplicity. Thanks for sharing and giving me pause to feel the world around me as it is: An imperfect spectacle.
Posted @ Thursday, January 12, 2012 9:21 PM by Kat evans
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